Misery/Tears/spironolactone/Propecia...Help!!!

sessa555

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Hey everyone!
So here's my fun story. I had long, curly, beautiful hair until I went off the Pill a year and a half ago. I stopped taking them because I was having cronic migraines and my Doctor figured they were hormone related. 3 months later my hair started falling out in handfuls and lost most of it's curl and fullness. I went crying to my derm who told me it was Telogen Effluvium and that it would grow back soon. 6 months later it was worse so I went to a derm at the university hospital. He did a scalp biopsy and basically said 'too bad for you, you have Androgenetic Alopecia, use rogaine.' I cried for 2 hours (this was on top of 6 months worth of crying in the shower EVERY morning while washing my hair and again while trying to do something with it before school).

I sought yet another opinion from a well respected hair specialist derm who gave me the same Androgenetic Alopecia diagnosis and prescribed rogaine. After researching the product I became absolutely terrified of losing what little hair I had left so I gave it up after a couple of days (it also made my scalp burn terribly). 4 months ago she prescribed spironolactone of 100 mg/day. I hate the side effects (dizzy, lethargic) and have not seen any improvement. Now she wants to put me on Propecia and I'm scared. She has done some leading research in female hair loss and definitely knows her stuff. She told me it might help, and that the reason it is not marketed to women is because of birth defects, not because it is ineffective. So I don't know what to do.

A couple of questions:
Has anyone had any success w/ going back ON the Pill and regrowing hair?
Has anyone been on Propecia/finasteride? With what results?

I am 23 years old and completely and utterly miserable about all of this. I have lost 65% of my hair in 1 year. My whole life my hair was my crowning glory and even if I felt fat, ugly, had a zit or whatever, it always made me feel good about myself. I guess I never realized how much of my identity was wrapped up in my hair, as stupid as that sounds. My self esteem is completely shot. I am a high school teacher, so wearing a hairpiece is, I feel, out of the question...kids are brutal and would be bound to notice somehow. I can't wear my hair down anymore, or even in pigtail buns...it's a tiny ponytail every day. But it's thining everywhere, so who knows how much longer the ponytail will even be around. I have 'scalp streaks' along the sides of my head and a huge, glaring, ugly part. Sorry to rant, but I am NOT dealing with this well at all. Please let me know if any of you have had any success w/ BCP's or Propecia and regrowth.
Thanks so much.
--Sessa
 

giggsy

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Sessa,

From the info you have provided, it seems you have not actually been to see a doctor and had a full blood test done. A doctor may also put you in touch with an endocrinologist who will take a look at your hormones and your blood test results and can possiblyfind something wrong with you.

It is essential that you do this, as a dermatologist can not do an internal examination. the majority of female hair loss has to do with either a hormone or nutritional deficiency...
 

sessa555

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I went to see an endo who took one look at the blood workup my physician did and said my thyroid was fine, see a derm. He didn't seem to think he could do anything for me. I am considering seeking a second opinion from another endo...what do you think? Also, I am VERY confused about what to think about the Propecia thing. Should I go ahead and try it? Does anyone have any experience with it? Thanks!
 

Maxine

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Your poor thing

Only 23...yes, I was in my 20's when I started battling thin hair too. It IS devastating, I know. Rogaine had just come out then and when I used it, it really worked for me. You have to use it for atleast 2-3 months though to see any results. Don't be scared by the horror stories of women losing more hair on the Rogaine. I got off it for a while and all the hair I'd grown fell out again! When I got back on it again, I had terrible sheds again for the first month and a half. Then, they subsided and now...OMG!!! I've got hair growing again after being on it 2 months! I use Dr. Lee's formula and it's great. Although the facial hair's a little annoying, wax strips work wonders to remove it so I am now happy again. I also use spironolactone to boost my hormone levels too. You should think about the spironolactone. These things are working for me. I can only share my experience with you. I know how bad it hurts to have thin hair though. I hope this note offers you help.
:) yours,
Maxine
 
G

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Hi I am on Proscar which is the 5mg version of Propecia ... I know that guy said you cant use it but in England my endo uses it for many many women.

I have been on for a month and a bit my shed has increased although apparently that is a good sign (I already have no hair after the rogain shed) arrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr anyway I will post if it works or gets worse ... knowing my luck these days it wont work but I am desperate to try it all.

The people who make propecia only say women cant use it because they are worried they will get sued if a woman becomes preggars on it .. my dr was adamant I was on the pill but I said "hey I have no sex drive while I am feeling so hedious you needent worry" !!!
 
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