@Roberto_72 @DoctorHouse @Bobster231 @Swoop @DoctorHouse @shookwun @Dench57 @Giiizmo @Janko @Calchas
*Long post, but PLEASE bare with me, I REALLY need some help*
Guys, THANK YOU SO MUCH! I'm so glad that in a case like this there are people out there willing to help others online, and I feel like I get more feedback here than any other doctor out there. I'm using this opportunity where I feel like that with a bit of effor I'll manage to write a full post. I need help, I really do. I apologize for referncing so many dear users at once, but I needed to summon whoever posted here with any bit of valuable information.
I'm not too good at writing but I'll try to break it down.
Before my constant head pressures/anxiety started:
Generally pretty healthy 32 years old. Work out often. Used to be 220lbs+ now I'm around 195 (cuz I can't really work out anymore like I used to). I do have polycystic kidney disease, but for now my kidneys are still fine, altho my blood pressure is usually is the 130s / 80s range and sometimes goes to 140s / 90s, and rarely to 150s / 90s, but most of the I make sure it doesn't much over 140 / 90 and keep it at pre-hypertension stage. I used to be quite "brave", now I fear about every little thing and my life has completely changed.
How it started:
It was about 2+ months ago, when I first started noticing a strong pressure feeling in my forehead, although at the time I thought it's just a headache, so I drank some coffee like I usually do, but this time to avail. I couldn't sleep much that night and only fell asleep in the morning, the whole night I felt a bit wierd but I didn't stress about it. Woke up in the evening and felt fine, took a shower, and after the shower started feeling pressures in my head, but this time quite strong. I felt lightheaded, dizzy, and strong pressures in my forehead and eyes, usually the type of eye pressure I get is that feel like it's at the top of the eyeballs, and I was very terrified because this was my first time every experiencing this. I went to the ER, blood work came fine, bp at time was 150 / 100 with 100 pulse, they just gave me some paracetamol and Vaben and released me in the morning. I thought this was a one time thing.
The next day I thought I felt fine and wanted to go to the gym but as soon as I left my house I started feeling pressures in head and eyes and I was lightheaded and confused and it feels like I don't know where I am and I just wanted to pull any car I see on the street and ask them to drive me back home, but I managed to walk back home.
That's when I started slowly dropping everything I was taking, I quit Propecia, minoxidil, caffeine, alcohol, whey, creatine, all the supplements I was taking. It felt like I was very fragile and anything could set me off so I eventually quit everything.
So at first, I still managed to get a "good day" here and there, but eventually it seemed like the head pressures are there 24/7, and lightheaded feeling is almost always there, like I almost never feel I am myself anymore, and I don't wanna even mention the anxiety and panic attacks which can last for hours upon hours.
How I feel now (literally everyday) :
It seems like the head pressures just love my head 24/7. Normally there's always a pressure at the forehead, and the eyeballs themselves feel like there's a constant pressure on them, then I sometimes get pressure around my cheeks and neck a bit, and another thing which started recently is I also get pressure at the top and sides of my head, it feels like my head is in a vice grip or like something is eating my brain from the inside as funny as it sounds. The pressure at the top of my head where the crown is literally killing me. The lightheaded feeling is always there to some sort of degree which frankly can be quite terryfing especially if I start getting kinda dizzy also. On top of the headpressures and lighthead I also suffer from anxiety attacks which I don't know if I bring them upon myself or they came by themselves. Also, with the anxiety attacks there is always nausea following with it damnit. But the main reason I suffer from anxiety attacks is because I have no clue what's going on with me, some days it feels like I'm about to die and other days it feels like there's a light at the end of the tunnel. I can't really function and when I feel just slightly better I start making arrangements and then I end up not being able to leave the house. I'm very dependant on my family at the moment. Gym is literally a thing of the past, if I'm lucky I'll go once a week and do some weights that any twink can do, when I'm unlucky the headpressures start intensifying during the workout and I just feel so damn terrible like I don't know where I am anymore and what's going on around me. I used to not let my self weigh below 220 and now I couldn't care less, I'm 195 and all I care is just my health. I wanna say that I don't care about hair anymore but for the moment I don't give a sh*t that's why I quit everything I was taking and I just wanna be normal again, I miss my old self. Just for the record, after 9+ months on propecia and 5+ months on minoxidil foam (twice a day), my hair was starting to look quite good that I didn't have to use Toppik anymore so it's sad I'll prolly lose all the hair I "worked hard for", also biotin (5mg) and msm powder (5-10grams) a day might have slightly helped altogether altho I wouldn't really factor it.
Advice for treatment:
At the moment I'm not taking anything other than a multi vitamin once in a while. I have a bunch of these "relaxing" OTC sh*t like passiflora, valerian, basically stuff like that which I'm not sure if it really does anything. I've been off propecia for 3 weeks, although for the last 2 months I been doing lots of trial and error so on average for the last 2 months I was probably only taking it for 2-3 days a week at most, but eventually decided my health is more important and laid off it. I haven't used minoxidil in over a week, but even before the last time I used it I was using it maybe once or twice a week, as I initially thought minoxidil was causing me the headpressures but at the same time I didn't wanna quit treating my hair.
I used paracetamol quite often for the headaches and head pressures altho it barely does anything. I'm not really living, I'm basically just surviving the day. I thought I'm going to see a phsycatrist much sooner through my medical insurance but it turns out the wait is a bit long, so I might go and see one privately, or perhaps ask my doctor to prescribe my something to ease off the edge. I told my Doctor to give me something until I start seeing the pyschatrist and he gave me Lexapro, I haven't started taking it, and after reading about it, I'd rather not start a med like that with a psych's supervision. Should I go for now ask for something like Xanax so I can use sparingly if I really need it ?
As for OTC stuff, some of u mentioned GABA and 5HTP so I guess I could try that in the mean while. Keep in mind that it's very hard for me to even look up stuff online, most of the time I just can't even bring myself to read more than a sentence.
So please guys, any advice is welcome, I can't express how much the support means to me at a time like this.