My "side" story, dealing with fear

[Prop]

Once you take care of the hormone levels which are causing trouble, your testicles will grow back.

i hope so.
my damages weren't extremely severe like other people
however only with time and integrators i feel i'm recovering a bit.
i want to wait more for drug therapy

i did broccoli treatment and worked very good for the prostate, better than antibiotics

 

[Ende]

I believe that the longer you wait, the harder it's going to be to recover. I recommend that you check your hormone levels as soon as possible, and seek help.

 

[Joe-1991]

That may be correct Enden, but if were going to act - it has to be the right treatment. Other guys have tried proviron and dostinex etc and had no improvements. Personally I believe it has something to do with the brain, although I am willing to try anything that is convincing and relatively safe.

 

[Ende]

I've not heard of a single case which that drug combination has been used. I've developed a protocol which is based on a solid hypothesis, and I assure you that it's a careful approach.

 

[Prop]

if were going to act - it has to be the right treatment.

i agree.
i like doctors aware of finasteride sides, authorize an international standard protocol; in this way i can make pression on my doctors

i'm little bit scared about random try.

 

[Prop]

I've developed a protocol which is based on a solid hypothesis, and I assure you that it's a careful approach.

enden did you developed it by youself?

didn't find doctors aware of fina permanent sides?

blood tests and exams are expensive, and however i need prescriptions for that.

i'm waiting next appointment for make pression on my Doctor, i hope he will accord me that

 

[Ende]

You'll most likely have a very hard time getting help from doctors, if you don't have baseline values to compare the result with. Most doctors think that everything is fine as long as all hormone levels are in range. They don't seem to understand how important the ratio between certain hormone levels are. What's worse is that you come and claim something that's not supposed to happen by using finasteride, and since the trials showed that everything returned to normal once those who experienced side effects quit the drug, you'll be defined as a headcase.

I didn't get any help from doctors at all. My hypothesis and protocol are based on 1 year of studying and experimenting.

 

[Prop]

You'll most likely have a very hard time getting help from doctors
you'll be defined as a headcase.

that's exactly the problem.

in my country is not possible obtain blood tests without prescription, even if you pay as private.

So, if my doctor believe that i'm an headcase, i'm fucked.

for this we need as soon as possible scientific proof about our condition, something more then posted on propeciahelp

 

[Ende]

Good luck waiting for that. I believe that we're dealing with problems induced by elevated estrogen level. Most endocrinologists don't even understand the significance of the T/E ratio, and you expect them to understand how finasteride affects your endocrine system if it manages to wreck it? The problem is that everything appears normal, when it's not.

 

[Prop]

Good luck waiting for that.
The problem is that everything appears normal, when it's not.

i know enden.

however when you went first time to your doctor, what was the diagnosys?
how many Doctor did you see?

in my case lot of symptoms are similar to a simple prostatitis
(however i did not exclude it)

we only need a shibboleth for discriminate our condition to headcases.

 

[Ende]

I walked the whole line, from several GP's to an endocrinologist. Took me 1 year. I waited several months to see the specialist, and that bastard turned me down. Blood test revealed very low testosterone level. Unfortunately it was still in range. My estrogen level was slightly above range. I had many severe symptoms of hypogonadism, and he said it wasn't anything to worry about, because all my levels were in range, or ALMOST in range. You believe that? I would've turned to suicide after that visit, if information and medication wasn't so easily available.

 

[Prop]

I walked the whole line, from several GP's to an endocrinologist. Took me 1 year. I waited several months to see the specialist, and that bastard turned me down. Blood test revealed very low testosterone level. Unfortunately it was still in range. My estrogen level was slightly above range. I had many severe symptoms of hypogonadism, and he said it wasn't anything to worry about, because all my levels were in range, or ALMOST in range. You believe that? I would've turned to suicide after that visit, if information and medication wasn't so easily available.

i see.

i try first the long and sad way, after that, if i will have no improvements at all
i will turn myself in "man cavy" and i will try to develop personal protocols.

however, you get medications from internet without prescription?
if yes, i will ask u privately some reliable sellers

 

[Ende]

No, there are doctors who prescribe most of my medication, but I've never met them I use assetchemist.co.uk / hwprescriptionservice.com. I've domestic sources which I'm using for all steroids, except Andractim - which is prescribed by a Doctor at Cyprus; allsaintsclinic.org.

 

[Prop]

some news

i had another uro visit, this Doctor wasn't much different respect others

he is insisting on the prostatecentric view of my symptoms.
he did not exclude fina is involved but he also told me that this is the last thing he wants to cure :woot:

he said: firstly we try all ways to cure the prostate.
(that is surely implied)
secondly we cautiously try something else, but he remarked that could cause more trouble than benefits.

i was disappointed because no Doctor wants handle this,
and he said: you are gonna find no Doctor because it's 2 times risky
first for the patient and second for the Doctor (if something goes wrong)

he understood well that if the situation will not improve i will go to another Doctor
that "provides me what i want", so i will see

---------------------------------------------------------

in these months i improved but ther's always a week in a month
where the deep low libido and belly disc reappears.
the shrinkage seems recovering but in strange way.
the shrunk area start to fill like the top of "lego block".
(i don't know if i make myself clear)
in erection i can feel clearly this weird thing.

however after a cycle of hi dose vit E,
i'm going to take quercetin before a strong cycle of antibiotics

 

[Prop]

update

in these weeks seems that i recovered more than 2 yrs
i can't say if depend strictly by vit E or about time, but the sensibility
is back nearly to pre finasteride, and prostate discomfort seems nearly disappeared

i met an andro\uro very aware of finasteride problem and he told me that probably the sides timeline is approaching to the end for me

he checked my prostate and he found that the inflamation is gone

in the meantime i assumed also vit D3 and quercetin
and no antibiotics

 

[TA45]

So Propecia can you please explain to us what exactly you used to recover from Propecia sides? I saw you mention vitamin E and D however if you could be more detailed many members would be thankful. For example: 500mg of vitamin E per day? 500mg of vit D per day? And what do you think helped the most? Im sure my numbers are off in my example but just waned you to get the idea of how detail could help many
Thanks

 

[Prop]

yes tim, but i constantly want to make myself clear

i have no idea if i'm going to recover because of my "protocols".
maybe i was just lucky because my sides were not severe and 2 yrs 6 months has passed since i crashed.

Vit E: 1500 UI daily
but for precaution now i dropped the dose to 800

taking hi doses of vit E for long periods can be dangerous
before try read carefully about vit E
it can cause hemorragic ictus and hi blood pressure

Vit D 800 UI daily

quercetin 600 mg daily
--------------------------------------------

I don't know what was more effective, neither if was something that i take before.

One thing i can say surely: when one of my sides (prostate discomfort) was less strong, i noticed an improvement in penile sensibility.
It's very similar to this case on P.help
http://www.propeciahelp.com/forum/viewt ... =30&t=1094

i'm still waiting for shrinkage and libido.

P.s.
I don't know if my improvements are stable.
I will post an update after 6 months and minor update editing this post.
-----------------------------------------------------------------------------------
--------------------------------------------------
minor update

experiencing cycle symptoms
From 1 jan to 16 was "good". from 18 to 27 was bad.
from 27 jan to 13 feb good again ....
it seems little recovering in shrinkage but not in libido

Minor up
All feb was good, from 1 of march little bad ...
It seems that cyclic syptoms rebound takes more time
to come back

Minor up
April was good maybe for my 1 month new protocol

Bromelain 100mg (2 pills daily for 1 month)

L arginyne 4 g (2 vial daily for 1 month)

pollen (2 spoons daily 1 month)

 

[Prop]

back from my andro/uro

he's probably the only one that takes care of PFS inj my country

he has a little "task force" with endo, fertility experts and so on

he was really honest in saying that he hasn't sufficient knowledge to treat such thing, they're tring to get more patient for statistics and common patterns

however the little team is always in touch with irwig, probably the major living expert of PFS

scheduled new blood tests and prostate exams .....

-----------------------------

however i know that others, focused on prostate, may have more
"effective solutions" than wait long yrs for a comprehensive understanding
of all PFS implications.

 

[ben760]

The penis tissue was getting softer, but Andractim reversed this within a couple of weeks. The penis is dependent on some DHT. People experiencing severe side effects from finasteride has DHT deficiency.

how long did you use andractim? does it need prescription? did it revert back after stoppage? my penis is softer and light after a week on finasteride.

 

[kc444]

Enden, do you think you are making your problems worse by continuing with finasteride? I ask because I am in a strange position of having experienced persistent sexual side effects from Accutane (identical to PFS in symptoms and perhaps cause) and now starting finasteride to control hair loss. My sex drive was crap before and is still crap on finasteride, so I figure that it's a win-win (win-tie maybe?). Many on Propeciahelp say they won't touch finasteride again, but I, like you probably, am not really willing to give up on the chance to save my hair.

I didn't realize that this thread was so old. Oops

Edit: nevermind.. I'm getting off of it