Hi Nay,
Sorry I didn't reply sooner, it's been a rough few weeks. Anyway, I have yet to be given a true 'diagnosis' from any dermatologist, which I found to be very odd. I was just told it was a form of alopecia, and pretty much to deal with it. I did have one dermatologist that tried an experimental treatment, but the only thing it did was make my body go crazy. The female thing we all love once a month lasted sometimes 3 weeks. I couldn't take it anymore, so I gave that up. The Doctor had warned me it would be a possible side effect. The one dermatologist that actually took a scalp biopsy said it was just a form of shedding, and confirmed the seborrheic dermatitis, which contributes to hair loss because of inflammation and irritation. It weakens the hair follicle. I really hate to say it, but what I've found out, I found out on my own, more websites than I can count, and many hours of research, too many to count. Maybe I just was unlucky and didn't find a doctor who took it as serious as I did, or didn't find one who specialized in it. I'm not sure, but I gave up going to the docs, they only took my money and I left more frustrated. I'm amazed at how many women deal with this now, it seems it has become an increasing problem for women. I think much has to to w/ out environment and the stuff they put in our foods, but what can u do, not breathe or eat? Not likely. lol :roll:
As far as anyone in my family dealing with, none to my knowledge. My mother has thinning hair, but I think that has to deal w/ her age, past hysterectomy, and medication she's on too. Before that, she didn't have this problem.
As far as another treatment that works, I did try Rogaine, and yes, it does work to regrow hair. Unfortunately, I did have to discontinue due to the side effects, particularly chest pain and irregular heart beat. I also tried Nioxin, which seemed to slow down the shedding, but didn't help with any regrowth. I tried the Hair Advantage stuff, that didn't seem to work at all. It made my hair dry, brittle, and it just looked terrible, and didn't seem to help reduce the loss, nor any regrowth, which is supposedly guaranteed. There guarantee is only for 30 days, and if you try to get refunded, of course they tell you it could take 3 to 4 months to see results. Well, by that time, you are ineligible for a refund, and it wasn't cheap, $150 for about a month including vitamins and a DHT blocker. I wasn't impressed.
So far, Tricomin is about the only thing I found that's actually worked, and I was very surprised it worked so quickly. But, I used it very religously, and leave it on even longer than they recommend. Time consuming, but has been worth it for me.
I also make sure I massage the shampoo and conditioner, and therapy spray in very well too. Massage stimulates the hair follicle, so I try to keep that in mind too.
As far as coping, just keep trying... It took me this long to find something that worked. I don't know how many times my husband has walked into the room after I've gotten in the shower, only to find me in tears because of the hair I'm holding in my hand. I had to clean the drain every time, and then lost more when I brushed it. I didn't have bald patches, it just thinned all over. And started becoming more noticeable in the front. I processed it to add body and fullness, which I'm sure wasn't good, but what else could I do? At least it gave the appearance of it being fuller, even though it wasn't. I miss my long hair I used to have. I had hair that went down to the bottom of my back, and I cut it just above my shoulders. It did help it to look fuller because it wasn't so heavy, plus you have more styling options. It was so thin, it wasn't looking very good long anyway. I'm now in the process of growing it back out, at least to the middle part of my back, or close to it. It's now below my shoulders 2 or 3 inches. I try to make sure I get my hair trimmed at least every 6 weeks, sometimes more. If you process, cutting off the dead ends helps your hair because it tries to rejuvenate something that is already damaged or dead. I do highlight my hair, because it also makes the hair shaft swell from the processing, but of course causes damage. Main reason I get the protein and heavy conditioner and put it on about once a week. It helps replenish moisture and repair at least some of the damage.
I'm finally at the point of being content w/ the thickness of my hair. I will continue the tricomin because I don't dare stop for fear of it falling out in clumps again. If I had to guess, I probably have what you would consider normal hair loss. I can run my fingers through my hair now and not pull out hair everytime. I can actually let my daughter brush my hair again without fear of it all ending up in the brush! That's a good feeling.
I am thinking about adding folligen to my regimen, in hopes to even accelerate even more regrowth. I understand some people have had problems w/ burning and irritation, but each person is different. I figure it's worth a try, just haven't done it yet. Guess I'm kind of afraid to mess up a good thing. lol Afraid if I add something or change anything, I might lose the progess I've made so far and not get back to where I am now. Terrible fear to go bald or so thin that it looks terrible. All I can say is keep trying to find something that works for you. Give each thing you try a few months to work, it does take time. I got lucky and started seeing results sooner than I would have ever expected, and not going to complain of course. Within a few weeks, my shedding was down to a minimum, and then a few weeks later noticed small hairs starting to grow. The reduction in shedding was what made me believe it just might work though. So I had a good sign from the beginning.
Oh, there was one other shampoo that I tried out of the salon, I believe it's made my Paul Mitchell, but not sure, but it was a tea tree shampoo, any salon should be to tell you which one it is. It had kind of a minty smell, and it helped alot for the seborrheic, it kind of tingled, and worked better than any tar shampoo or something like that. I hear tea tree and saw palmetto can be very good natural 'cure alls'. Just what I've heard. But it did also help reduce the shedding, but I didn't just want to reduce shedding, I wanted my old hair back! So I used this stuff until I could find something better.
Please hang in there and feel free to contact me anytime with questions or just to talk. Take care and good luck.
Nay said:
Hi Patrips,
Thanks for your helpful post. You had a lot of good information. I really appreciate it (as I'm sure others do too!)
Were you diagnosed with Androgenetic Alopecia or Telogen Effluvium? (I was diagnosed at 23 yrs old with Androgenetic Alopecia) Does anyone have it in your family? I'm 25 and have been dealing with this for the last two years and no one in my family has this. (It is hard for them to understand.)
You mentioned that you have been dealing with this for 8-9 years and that you have done a lot of research. How have you coped? What advice would you tell someone losing their hair from what you learned? Has their been any other treatments (besides Tricomin) that were somewhat beneficial? What stands out in your mind as the most helpful info you learned in your research?
Are there any other treatments that you use beside Tricomin, Nizoral, and Crinagen (like vitamin supplements, flax seed oil, lasercomb, topical solutions, hormone supplements, or iron)?
Let's stay in touch...