Python doesn't know how to read. where do you see I am glorifying her, in fact I did not describe her abilities in any way. It is people like you who make this forum a girly chit-chat salon rather than a place for action. If you read my email you see very well that I am trying to push others to start with this, not me. But I am frustrated that no one is doing it. Probably because of naysayers like you.
Benjt, you are exactly right. It is HOW to do this in a transparent, trustworthy and effective way that is KEY.
But this is not an insurmountable issue. It could be setup in a way that contributions to science are made ONLY after a vote that involves all who have donated, with votes being weighted by contributions. So you need someone who is on this full time especially in the beginning, we need someone educated and has a degree in biology if not more (there are some of these guys around on the forum), and we need a board, to discuss the strategies. And then everything else happen through the board proposing to shareholders the strategy which they would vote on.
For example, you first raise the money making clear and legally binding that the manager cannot spend the money without votes. Then there will be discussions. Once the group has raised say 1million+ the representative could request meetings with people in Columbia, Upenn, or even China to discuss the potential donation and WHAT would they do with the money. The board might for example decide to donate one million to this, and another million to that, they submit the proposal to the shareholders and there will be a vote.
Alternatively, to make it easier, people can vote for a board from Hair loss forums (say 10-20 guys) with only a couple being involved in day to day businesss, and the foundation could be setup such that these guys should decide what to do with the money, hoping that the people selected are honest and educated enough... I prefer the first option (direct vote) but more complicated